Christmas Raffle 2019
Have you ever Googled medical conditions on the internet?
It was the first thing Luke’s parents did when the doctor tested their young son for Duchenne Muscular Dystrophy. It made for very bleak reading – it said he would be in a wheelchair by 10 and dead by 18. Justina and Paul were devastated. Like all parents they had dreamed of a future for Luke with college, a good job, a partner and grandchildren. But, being a hugely positive couple, they decided they were not going to let a life-threatening condition define Luke. Positivity is a family trait they have passed on to their inspirational son.
Thanks to supporters like you previously in buying raffle tickets, Hope House has been here for Luke and his family.
Vital respite care has given Justina and Paul a chance to recharge their batteries, and Luke some much-prized independence. Our transition nurse Rachel has been here to support Luke as he gets older by helping him in practical ways such as getting the bigger wheelchair he so desperately needed, and by giving him the confidence and skills to follow his dreams by learning to drive and looking for work.
As Luke says, “There’s stuff I can’t do but what’s the point of worrying about that. I’m so lucky that I have got Hope House, but what makes me sad is that they can’t afford to help everyone.” Luke is right.
More and more families need us and we can only currently afford to help one in every three who do. This breaks our hearts.